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A p\u0159\u00edb\u011bh Viktorky\u00a0<\/p>\n
Viktorce Matou\u0161kov\u00e9 byla diagnostikov\u00e1na vz\u00e1cn\u00e1 genetick\u00e1 porucha CACNA1A.<\/p>\n
Tato porucha postihuje nervov\u00fd syst\u00e9m, zp\u016fsobuje v\u00e1\u017en\u00e9 v\u00fdvojov\u00e9 opo\u017ed\u011bn\u00ed, probl\u00e9my s pohybem a koordinac\u00ed, a tak\u00e9 ovliv\u0148uje zrak, \u0159e\u010d a schopnost p\u0159ij\u00edmat potravu. U Viktorky se nemoc projevuje tak, \u017ee zat\u00edm nesed\u00ed, neleze ani nechod\u00ed, m\u00e1 zrakov\u00e9 posti\u017een\u00ed (nystagmus), ment\u00e1ln\u00ed posti\u017een\u00ed, zat\u00edm nemluv\u00ed a m\u00e1 zna\u010dn\u00e9 pot\u00ed\u017ee s potravou – je schopn\u00e1 j\u00edst pouze ma\u010dkanou\/pyr\u00e9 stravu, kterou je nutn\u00e9 p\u0159ipravovat a krmit j\u00ed.\u00a0 \u00a0 P\u0159esto je Viktorka vesel\u00e1 a vn\u00edmav\u00e1 hol\u010di\u010dka, kter\u00e1 miluje hudbu, hlasy sv\u00fdch bl\u00edzk\u00fdch a dok\u00e1\u017ee se radovat z mali\u010dkost\u00ed. Sv\u00fdm \u00fasm\u011bvem n\u00e1m ka\u017ed\u00fd den p\u0159ipom\u00edn\u00e1, jak velk\u00e1 je jej\u00ed s\u00edla a jak stoj\u00ed za to bojovat o ka\u017ed\u00fd mal\u00fd pokrok. V sou\u010dasnosti s n\u00ed pravideln\u011b cvi\u010d\u00edme a doch\u00e1z\u00edme na terapie. Pro jej\u00ed dal\u0161\u00ed rozvoj by v\u0161ak byly nezbytn\u00e9 i speci\u00e1ln\u00ed pom\u016fcky, pravideln\u00e9 terapie v \u0161ir\u0161\u00edm rozsahu a zejm\u00e9na zah\u00e1jen\u00ed neurorehabilitac\u00ed, kter\u00e9 by j\u00ed mohli pomoci v pohybu, komunikaci a tak\u00e9 p\u0159i manipulaci s j\u00eddlem a pit\u00edm. Tyto slu\u017eby a vybaven\u00ed jsou ale finan\u010dn\u011b velmi n\u00e1ro\u010dn\u00e9 a rodina u\u017e nen\u00ed schopna je sama zajistit.\u00a0<\/p>\n
Podpora z Va\u0161\u00ed strany by pro rodinu znamenala obrovskou pomoc – umo\u017enila by Viktorce z\u00edskat to, co opravdu pot\u0159ebuje k dal\u0161\u00edmu posunu: vhodn\u00e9 pom\u016fcky pro ka\u017edodenn\u00ed \u017eivot, terapie a neurorehabilitace, kter\u00e9 j\u00ed d\u00e1vaj\u00ed \u0161anci na lep\u0161\u00ed kvalitu \u017eivota a v\u011bt\u0161\u00ed samostatnost.<\/p>\n
\u00a0<\/p>\n
Velmi si v\u00e1\u017e\u00edme, \u017ee pom\u00e1h\u00e1te rodin\u00e1m v t\u011b\u017ek\u00fdch \u017eivotn\u00edch situac\u00edch a moc d\u011bkujeme, \u017ee pom\u016f\u017eete Viktorce vykro\u010dit k lep\u0161\u00ed budoucnosti.\u00a0<\/p>\n
S pozdravem rodi\u010de Lenka a Pavel, Viktorka a Kok\u00f6tky.<\/p>\n
<\/p>\n","protected":false},"excerpt":{"rendered":"
A p\u0159\u00edb\u011bh Viktorky\u00a0 Viktorce Matou\u0161kov\u00e9 byla diagnostikov\u00e1na vz\u00e1cn\u00e1 genetick\u00e1 porucha CACNA1A. Tato porucha postihuje nervov\u00fd syst\u00e9m, zp\u016fsobuje v\u00e1\u017en\u00e9 v\u00fdvojov\u00e9 opo\u017ed\u011bn\u00ed, probl\u00e9my s pohybem a koordinac\u00ed, a tak\u00e9 ovliv\u0148uje zrak, \u0159e\u010d a schopnost p\u0159ij\u00edmat potravu. U Viktorky se nemoc projevuje tak, \u017ee zat\u00edm nesed\u00ed, neleze ani nechod\u00ed, m\u00e1 […]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[195],"tags":[],"class_list":["post-8701","post","type-post","status-publish","format-standard","hentry","category-aktualne"],"_links":{"self":[{"href":"https:\/\/www.svratka.cz\/index.php?rest_route=\/wp\/v2\/posts\/8701","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.svratka.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.svratka.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.svratka.cz\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.svratka.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=8701"}],"version-history":[{"count":0,"href":"https:\/\/www.svratka.cz\/index.php?rest_route=\/wp\/v2\/posts\/8701\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.svratka.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=8701"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.svratka.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=8701"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.svratka.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=8701"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}